Down south and blissfully happy

Well After a rather busy day yest, it was nice to be back with Adz at his home. It was a very sad day yest as I met Adz's friends mum. It was difficult as I never met her b4 and she had just lost her child.
I'm a good person when it comes to sitting and listening to people, and that's really all i could do. It was  hard to see someone so upset and in disbelief and all i wanted to do was cuddle both Adz friends mum and Adz.
I can be very strong for people in these tough times but this was difficult for me seeing Adz so upset and he's clearly been crying.
Today was another day of just talking and having a look round town. I bought some DVD's that we could both watch and we also went for dinner with one of Adz friends.
All in all apart from the sadness of loosing someone I'm totally happy and feel at home here. For the first time in years finally things are going well and I can look forward.
I'm a very happy little kitty and very much in love.
Health wise I'm ok and starting to feel Ok but my kidneys are still hurting. I have felt abit " off" the last few day's with feeling headachey and sick but I know this is to do with my kidneys, so I need to drink more water... I'll try.
A bit of a short one as its late so take care
later gater
xxxxxx

Another life lost

After my earlier post I'm very sad to sad that Adz lost his friend.. I never knew this friend but my heart is saddened to hear this news and my thoughts and prayers go to this person's family, friends and loved ones..and to my darling Adz xxxxxxxx

Sadness that CF causes

I'm one excited kitty, I'm going to the big smoke tomorrow and meeting Adz. I'm soooo loooking forward to seeing him.
Sadly one of Adz friends is very very poorly. This is how cruel CF can be and its not fair by any means. All us CF's deal with loosing friend's to it at some point in our lives but it never get's any easier the older you get. Sadly alot of sufferers pass away at a far too young age and this is difficult for anyone to get their heads round.
I remember I lost 18 friends in two years to CF, they were all under 30, four of those people were very very close friends of mine and i loved them very much. There's not a day gone by that those people are not in my thought's.
I feel for Adz as there's nothing anyone can do now except pray and hope. His friend is in God's hand's now and if your listening up there just make this person strong enough to get through this.
I'm very lucky CF wise although everything else has had it, my lungs seem to be good and I've had no IV treatment for 18 months plus my poor old kidneys wouldn't cope with being stuffed full of more drugs.
I've had a really normal life even though I'm far from normal I quite enjoy being nuts and not taking life so seriously.
I'm going to be as supportive for Adz as I can be, I wish there was more I could do but this is a road noone can help with
Lifes a bugger
I am going to love every second with Adz, I miss him when Im not with him. I am though a very happy yet tired kitty after todays travels to Hospital. My veins are crap infact I don't think theres blood in me at all. Julie my lovely nurse got a nice little fat vein in the back of my hand. It was all going well when the veib blew and a rather large lump appeared. We got what blood was needed thankfully but its left me with a rather big bruise on my hand...I have a war wound LOL
I got back home early afternoon and started packing. Why is it girls always have way too much stuff. I'm going for a week but it looks like i'm going for a month. I repacked fopur times and theres still tons of it, mainly tablets and crap.
Anyhoo packed and ready to go..train at 8AM so its an early start for kitty.
will update when I can
and Angels do your thing and protect Adz friend...
Later gater
xxxx

Kitty's going to London

Wellthe weather was so dull this morning I had to derag myself out of my warm bed. Had to get up as I was excited because I was going to buy my ticket's for going down to London on Thursday to see my Adz. I'm going to be spending a week with him and I really can't wait.
Got into town which was megga busy and for for strange reason unknown to me and the rest of the bus there were loads of police everywhere. Anyhoo I got off the bus, got my ticket's and then went off round town to buy a few bits and pay bill's.
Went to marks and sparks to get something yummy for tea and came out to go get the bus for home. I can never understand why people still walk into you when you have a million bag's of stuff, its like their glued to that one bit and won't move...Div's.
As I walked to the bus stop I saw the million police cars and van blocking off the road..Great!
I asked what was cracking off to the policeman stood waving cars the other way. A blokes decided he wants to jump off the building over there so we cant let you go passed. This sounded a good idea as I didn't want the guy to throw his self off the building and land on me.
Got home OK in the end but I felt so tired, I text Adz a few times and then fell asleep. I feel much better than I did, I get quite sick when im that tired.
Anyhoo I'm at hospital tomoz for blood tests then it will be Thursday!!!!!!!!!!!!!!!!!! All my Xmases at once, I really can't wait to see Adz and hold him
Anyhoo I'm off for a brew and a rather nice vinilla and strawberry cupcake from M and S..yummy

Hypa happy kitty..the smiles never end

Super happy as I've found out Adz can go home later on this week and i'm going down south to stay with him a week. I'm like an over excited kid at Xmas high on chocolate....Oh that;s normal then. I blame the white malteasers I had yesterday( which was a treat as i'm not allowed to eat them really)
Still had a really good day and went swimming!!!! have had really daft thought's at trying the marathon again..don't know why cos its bloody hard work but feel I need to aim high and have another go..who know's I might get round the whole way.
Anyhoo the swimming went well, six full lengths and NO stopping...go kitty...
I was very knackered by the end of it and had to go get some lucazade as I had the wobblydoo's. ( wobblydoo's are hypo's, when your bloodsugar levels drop) Yes I'm diabetic as well, God had a master plan for me when i was born but forgot half way through what it was, so just gave me CF, diabetes, bad sight in one eye and renal failure just to see if I could kick its ass..... and Ive done that quite a few times now mwahahahahah.
The main thing is Adz is on the mend and going home, can't wait to see him. Being over 300 miles away from each other is god dam difficult but we alway's make the most of our time together. We get on like fish and chips, its fantastic.
My next mission in life is world domination.. not sure if the world's ready for kitty, maybe abit too kookie for them but one things for sure the world would be a bloody fun, happy place to live.
Well Ive got to get washing done as i have no clean stuff for my travel's unless i go in my bike leathers!!
later gater
xxx

kitty's in love

I don't write two posts on my blog's normally but my mind is racing and i write good stuff when it's like this.
My life at the moment is going great, its never been this brill before. I can't believe how I feel About Adz, I never set out to fall for anyone never mind a fellow CF. I've grown to love this guy so much over the last few months, feeling's I thought I'd never have for anyone ever again. I suppose it goes to show when your not looking for love it can suddenly creep up on you and smack you at the back of the head.
I've only ever been in love once before and sadly he was lost to CF. Now I'm finding that I'm in love again for only the second time in my life and I tell you something, it feels fantastic. Itsstrange that Ive found love with yet another CF, maybe cos we understand each others health problems...I don't know.
My life has changed for the better I know that. Year's of relationship's that ended badly and now one Ive only ever dreamt of. It may sound funny but I have to keep pinching myself to make sure I'm not dreaming and that Adz is really with me.
I can dare to think of a future with this guy, others Ive been with there was no chance of doing that. I know whatever the future holds for me and Adz that Ive got a friend for life in him, not just a friend but a best friend, to be honest I can never see my life without him now whether he's my partner or just a friend. But I know he's a very very important person to me and yes I'm in love with him and very proud to say so
Until another time..take care
later gater
xx

Let's go fly a kite....it's very windy!!

I didn't get to sleep till around 4Am , 1= because it was so windy and 2= I was texing Adz. Anyhoo I got up late and it was still windy..a good day to fly a kite hehe. The trouble is even if i had the energy to go fly a kite I could end up in Jersey or France as my weight is low at the moment and it doesn't take much to blow me over.
I was meant to be going out on my friend's motorbike( pillion) today but its too windy for that too and it would be hard work riding and keeping the bike from doing a sizzlesnake across the road.
So today will be sat at home listening to music and drinking tea, which is bliss to me. Also my kidneys have decided to give me a break today from pain so I'm like a " normal" nutter today.
To be honest I'm getting use to being in pain most days now with my kidney's and at times its hard to remember life before all this crap...and it is crap. My whole body sometimes feels its giving up on me, its a constant battle to keep from screaming out loud...STOP, I HAD ENOUGH! and although I'm a happy go lucky girlie i can sometimes hide away from the world and feel like that.
I'm pleased I have a understanding boyfriend. I don't have to explain why im quiet or not smiling if I have a bad day cos after all Adz has days like that as well. Although having cystic fibrosis really suck's at times, its made me a better person and i have determination to get on and do things in life just to say to my docs ...ner I did it!
Hopefully Adz will be going home from hospital soon, I miss him. I just hope he get's a break from it all as he's spent alot of time in hospital the last few weeks. The first month we were together he was in hospital. He makes me blissfully happy its daft. Wer hope to go skiing soon, which will be soooo funny as I can't ski and will end up most of the time on my bum. Motorbikes I can handle..ski's is another thing and abit dodgy. One thing's for sure if all else fail's I know I'm dam good at snowball fights!!!!!!

Drip drip drip...its raining!

Woke up late this morning to a horrible drip, drip drip sound. At first it weas panick thinking that the bathroom might have flooded. In my dizzyness of trying to wake up fast and seeing what was making the sound, I got my foot caught in my charger lead for the phone and fell flat on my face.
After recovering from falling over I went in search of the drip. Was very relieved to find that it wasn't the bathroom tap dripping or that the bathroom had flooded but in fact was raining outside and it was nextdoors cuttering that was blocked with leaves and the water was dripping onto our side of the house.
Missing Adz ( Adam) as he's still in hospital. He's having a tough time of it as not only as he got his self to get right but one of his friends is very ill. Cystic fibrosis is a total smeghead at times. We make such close friends who have it then sad stuff happens and their taken from us.
Hopefully I will see Adz soon, I've done so much with him it's been fab. We've been together just over two months and Ive never been as happy as I am with Adz.
I was very pleased with myself yesterday as I got to do my new injection for my anaemia. It took six attempts at getting the needle in and i was getting in abit of a tizwas with it but I got there in the end.
I kinda thought like a dart player in the end and just throw it at my podgy bit of leg( not that I have much podge at the moment). Anyhoo it all went swimmingly as they say , just hope I can do it better next week.......sigh.
I feel alot brighter today although the weather isn't, can't believe how simple thing's get me so God dam tired. Having renal failure aint much fun and Ive started to notice little changes in my health.
I get more tired and need to sleep more, my weights going down although Im eating and the worst thing is the breathlessness. I never got breathless before even with my CF. Looking at me now you would never think I did 13 miles of the London marathon!!!!!!!!
We have a really good gym near to where I live with a huge swimming pool. I think I might join it and at least start swimming again, God know's it won't hurt and maybe it might get me back to my full fitness again but its worth having ago.
I have many ideas's floating around in my kittyworld head, some are practical some are plain nutty but one thing's for sure im never bored.
I like being in kittyworld it feels a happy place its when kittyworld and the real world meet when its not as great but sadly I like many of you have to deal with the real world.
One thing I know for sure after years of feeling alone, Ive found a few good friends who have made my world a better place ( Andy, Nikki, Clive, and another Andy).
The one special person who's made the biggest difference is Adz, think it's because he understands the crap we have to put up with at times with CF and also he's a real good, kind person. After having such a bad time with other relationship's it's so nice to have one that is filled with love , laughter and smiles.... I'm truely blessed.
Think I might post one or two of my stories on here soon, if nothing else it will be make people smile.
Anyhoo that's all for now folks
Later gater
xxxxxxxxxxxxx

This kitty Rock's

Woke up at 6am this morning with flipping toothache. I think Ive got abit of cold in my jaw to be honest after bein out in the cold last weekend at the wartime weekend. I got up and had some painkillers, then a shower and feel much better.
Today is a new stage in this kitty's life. I start my weekly injections of Aranesp for my anaemia. I'm getting use to the strange thing's i have to do with renal failure, but its still all new and the thought of APD is still worring me. APD is the dialysis Ive decided to do when the time comes. It means I'm hooked up to a machine for 9 hours over night but I think its better than going to hospital 3 times aweek. Also I can do APD at home and no need to go into hospital and most importantly I can still travel.
Hopefully Adz will have better news from the docs today. My life has changed so much since meeting him. He's a kind soul with a very good heart. No matter what the future hold's for us I know we will be best friends for life. Adz has had a massive impact on my life, he makes me blissfully happy and my CF team have noticed how smiley and happy I am. I also seem more positive with lot's of thing's...surprising how the right person can make you a better person.
The trolley coins are selling well..I'm still waiting for a new batch but blame the post as they are on strike.
For one small kitty Ive gone through alot in my life. Ive had cataracts in both eyes and for a few months lived life as a blind person. I always remember the first things I saw when I had my cataracts done. In my hospital there are two very large paintings of flowered gardens. The colours are bright blues, whites and purples. these paintings were the first things I saw when i got my sight back. It was so bright and beautiful it took my breath away. I make a point of looking at those paintings every time I'm in that part of my hospital.
It made me realise we shouldn't take our sight for granted and we should see it as a gift.
Not long after that I went to Disneyland in Paris for New year. They had a brilliant fireworks display to welcome in the New year. As I watched the fireworks I had tears rolling down my face, not cos I was sad but because I could see the beautiful sight before me. It all sounds so simple but I was given a second chance to see which meant more than anything in the world to me.
The reason for the blindness was my diabetes and although i can see ok its far from perfect and the right eye isn't great at all.
Still I still think I'm a very lucky kitty and CF wise I'm as fit as a flea which im grateful for.
Anyhoo that's enough for now, I have to decide what colour to do my toe nails hehehe
until the next time
laters
Ali
xx

another step towards smileyworld

I feel much better today than yesterday. Having Chronic renal failure ain't much fun. It makes you tired and feel quite sick most of the time. I have to start some injections which will help my anaemia which is common with people who have renal failre. The main cause of anaemia is when the kidney's cannot produce the correct amount of the hormone erthropoietin. It means ive not enough oxygen in my blood which makes me tired and breathless. The Aranesp injection should help with this.
On a brighter note Adz( Adam) my boyfriend is doing OK, although he's got an achy chest after doing his blows for his lung function tests. His lung function when he went into hospital was 49% which isn't good at all. After doing his blows today the LF ( lung function) has gone up to 71% which is a massive improvement, I'm really very proud of him and happy thing's are going in the right direction.
Finally I got round to getting my bedroom tidy and found a massive spider under a pile of clothes. I hate spiders but was brave and got rid of it.
Been chatting with my friend Andy on FB, he's kept me entertained while Adz is away and has no PC. I'm a very luck little kitty to have Adz and a few very good friends.
It's very dull here today, im not keen on winter, i like the sun and warmth too much LOL
Well not much else to write
Laters
xxx

Good friends and happy times

This is a second time I've tried keeping a blog but the last one wasn't too great, so I'm hoping this one will be loads better.
Life has changed alot for this kitty, the main thing being in a relationship with Adz. Both of us have cystic fibrosis and CF's aren't meant to be involved with each other because of cross infection. I had to think long and hard about this but there's something about Adz i love. He's straight to the point and takes no rubbish which makes a difference as most people are too affraid to say what they think.
I've also started a really fab friendship with Andy who also has CF, feel's like I've known the guy years, we get on really well and its nice having him to chat to.
I've not been looking forward to the winter for many reasons...kittys don't like rain or cold. Plus it means the end of motorbike riding for the best part of 6 months. I love motorbikes and life without them is horrid. it's my one way of getting away from the hum drum world of CF, diabetes and renal failure( I have all three for my sins, i think God had a plan for me but forgot what it was and gave me this lot to put up with).
I'm on my eighth cup of tea of the day, love tea and think i must drink much more than a normal person should...mind you i'm far far from normal ...kookie is the word, which i like anyhoo.
will try my best to keep this blog going, and hope to put some of my little stories on here for you all to read, if nothing else it will make you smile
laters
xxxxx